AMEND news in Author: gulp_user

Introducing PPGL (SDH) Syndromes Films’ Launch

We are delighted today to launch our new patient experience films about PPGUL syndromes caused by Succinate Dehydrogenase (SDH) mutations.  These were produced as part of our Phaeo Para Support UK project thanks to a grant from Advanced Accelerator Applications.

New Phaeochromocytoma Booklet

Our new and improved booklet on sporadic phaeochromocytomas is now available to download for free.  Patients may request a free hardcopy via the office.

Click here to go to the booklet

Crisis Card for Phaeo/Para Patients

AMEND's Phaeochromocytoma & Paraganglioma Crisis Card is a potentially life-saving initiative to help ensure that patients with these functional tumours are not given medicines that may make their condition worse.  The cards will be distributed via clinicians who can order them from our NHS Resources webpage.

Order cards for your patients