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    • Community Advisory Group Members Sought 18th August 2021

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    • Crisis Card for Phaeo/Para Patients 15th July 2019

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    • Exclusive Tees for Rare Disease Day 29th January 2021

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    • Get Ready for Phaeo Para Awareness Week! 28th July 2021

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    • Introducing PPGL (SDH) Syndromes Films’ Launch 12th July 2020

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    • New Date for Information Day 11th January 2021

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    • New Patient Information Book for PPGL Syndromes 30th September 2020

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    • New Phaeochromocytoma Booklet 16th October 2019

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    • New Resources for Symptom Management 20th August 2020

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    • Phaeo Para Awareness Day 2022 14th July 2022

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    • PPSUK Social Media Presence Expands 20th August 2020

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    • UK Centres Awarded Centre of Excellence Status 18th August 2021

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    • Virtual Support Meeting Dates Confirmed 29th January 2021

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    • Welcome to our new website! 20th August 2020

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