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    • 25th March 2024

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    • 2023 Annual Patient Information Day Bookings Open 6th October 2022

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    • 2023 Annual Patient Information Day Success 26th May 2023

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    • AMEND 2024 AGM Rescheduled 5th July 2024

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    • Community Advisory Group Members Sought 18th August 2021

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    • Crisis Card for Phaeo/Para Patients 15th July 2019

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    • Do you have a story to tell? 26th January 2023

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    • Exclusive Tees for Rare Disease Day 29th January 2021

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    • Funding received for Peer Support Meetings 6th October 2022

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    • Get Ready for Phaeo Para Awareness Week! 28th July 2021

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    • Introducing PPGL (SDH) Syndromes Films’ Launch 12th July 2020

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    • Kids’ Cartoon Reaches Finals of Film Awards! 2nd March 2023

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    • NETs in RETS 27th September 2023

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    • New Date for Information Day 11th January 2021

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    • New Kids’ Cartoon Helps Explain PGL Syndromes to 5-year olds 11th November 2022

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    • New Patient Information Book for PPGL Syndromes 30th September 2020

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    • New Phaeochromocytoma Booklet 16th October 2019

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    • New Resources for Symptom Management 20th August 2020

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    • New! Young Adults’ Survey 5th January 2024

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    • Peer Support Meetings for 2023 6th January 2023

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    • UK Centres Awarded Centre of Excellence Status 18th August 2021

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    • Virtual Support Meeting Dates Confirmed 29th January 2021

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    • Welcome to our new website! 20th August 2020

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