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2023 Annual Patient Information Day Bookings Open 6th October 2022
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2023 Annual Patient Information Day Success 26th May 2023
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AMEND 2024 AGM Rescheduled 5th July 2024
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Become a Peer Support Volunteer 9th February 2023
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Big Give 2023 Christmas Campaign 21st August 2023
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Charity Film Awards Voting Period Extended 6th January 2023
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Community Advisory Group Members Sought 18th August 2021
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Crisis Card for Phaeo/Para Patients 15th July 2019
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Do you have a story to tell? 26th January 2023
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Exclusive Tees for Rare Disease Day 29th January 2021
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Funding received for Peer Support Meetings 6th October 2022
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Get Ready for Phaeo Para Awareness Week! 28th July 2021
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Introducing PPGL (SDH) Syndromes Films’ Launch 12th July 2020
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Kids’ Cartoon Reaches Finals of Film Awards! 2nd March 2023
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NETs in RETS 27th September 2023
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New Date for Information Day 11th January 2021
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New Kids’ Cartoon Helps Explain PGL Syndromes to 5-year olds 11th November 2022
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New Patient Information Book for PPGL Syndromes 30th September 2020
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New Phaeochromocytoma Booklet 16th October 2019
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New Resources for Symptom Management 20th August 2020
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New! Young Adults’ Survey 5th January 2024
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Peer Support Meetings for 2023 6th January 2023
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Phaeo Para Awareness Day 2022 14th July 2022
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Please vote for our cartoon! 17th November 2022
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Shop Christmas in aid of AMEND/PPSUK! 4th November 2024
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Special Event for Scottish Members 5th July 2024
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UK Centres Awarded Centre of Excellence Status 18th August 2021
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Virtual Support Meeting Dates Confirmed 29th January 2021
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Welcome to our new website! 20th August 2020
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