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  • 25th November 2025

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  • Big Give 2023 Christmas Campaign 21st August 2023

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  • Community Advisory Group Members Sought 18th August 2021

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  • Crisis Card for Phaeo/Para Patients 15th July 2019

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  • Do you have a story to tell? 26th January 2023

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  • Exclusive Tees for Rare Disease Day 29th January 2021

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  • Funding received for Peer Support Meetings 6th October 2022

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  • Get Ready for Phaeo Para Awareness Week! 28th July 2021

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  • Introducing PPGL (SDH) Syndromes Films’ Launch 12th July 2020

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  • Kids’ Cartoon Reaches Finals of Film Awards! 2nd March 2023

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  • NETs in RETS 27th September 2023

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  • New Date for Information Day 11th January 2021

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  • New Kids’ Cartoon Helps Explain PGL Syndromes to 5-year olds 11th November 2022

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  • New Patient Information Book for PPGL Syndromes 30th September 2020

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  • New Phaeochromocytoma Booklet 16th October 2019

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  • New Resources for Symptom Management 20th August 2020

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  • New! Young Adults’ Survey 5th January 2024

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  • Peer Support Meetings for 2023 6th January 2023

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  • Phaeo Para Awareness Day 2022 14th July 2022

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  • Special Event for Scottish Members 5th July 2024

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  • UK Centres Awarded Centre of Excellence Status 18th August 2021

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  • Virtual Support Meeting Dates Confirmed 29th January 2021

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  • Welcome to our new website! 20th August 2020

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