• I live in Ipswich, Suffolk and have three grown-up children.  My husband sadly passed away in December 2017 after 27 years of marriage.  Before giving up work to care for my husband, I worked as a Higher Level Teaching Assistant at a local primary school.  I enjoy travelling, gardening and socialising.

    Becoming a Regional Volunteer means a lot to me as it is a charity very close to my heart.  My late husband and our three children were all diagnosed with MEN1.  The support and advice I have been given from AMEND has been of great comfort and I would like to enable peer support for others who find themselves in similar situations.  Having my whole family diagnosed with MEN1 was very overwhelming at first, but by discussing it with others and gaining knowledge of the condition really helped.  Unfortunately, my husband is no longer with us but I feel he would be very pleased that I continue to raise awareness and understanding of the condition which hopefully will benefit not only other sufferers but also our children and grandchildren.