• Andy Price

    My name is Andy, I have been a member of AMEND since 2018, following diagnosis of a mediastinal paraganglioma.

    Information and support from AMEND was invaluable in those early days following my diagnosis; more on learning of my SDHB mutation and its presence in two of my children.

    I want to commit to supporting the ongoing work of AMEND and in raising awareness of PPGL disorders to the public and personally in my work as an educator in the Ambulance Service. I would be very interested in assuming a role which assisted in ensuring the charity meets its obligations.


    Andy was co-opted onto the Board of Trustees in March 2021 and his position is due to be voted upon at the 2021 Annual General Meeting on Saturday 14th August from 10-10:30.  All registered members will have received emails about the AGM.