NHS Resources
PPSUK is your go-to organisation for patient information resources and support services for your patients with phaeochromocytoma and paraganglioma tumours and syndromes. These resources are now free to order for registered AMEND/PPSUK Health Professional Members working in UK NHS Trusts, but please try to limit your order to avoid waste and expensive postage costs.
All our resources are publicly available to read and download from this website. Membership of our organisation is open to and free for healthcare professionals.
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Clinic Refresher Pack
£0.00 MORE INFORMATION / BUYClinic refresher pack consists of x2 A4 posters and x30 bi-fold clinic leaflets
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Hereditary Phaeo Para (PPGL) Syndromes
£0.00 MORE INFORMATION / BUYBrand new title for 2020. Detailed patient information book on PPGL Syndromes.
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Employment & Returning to Work
£0.00 MORE INFORMATION / BUYA guide for both employees and employers
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Phaeo/Para Crisis Card
£0.00 MORE INFORMATION / BUYPhaeochromocytoma and Paraganglioma Crisis Card
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Starting a Family
£0.00 MORE INFORMATION / BUYExplores the different conception options available and the practical, physical and emotional aspects of each.
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Working with your Medical Team
£0.00 MORE INFORMATION / BUYInformation on multidisciplinary teams (MDTs) and tips on how to communicate with them
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PHAEOCHROMOCYTOMA BOOKLET
£0.00 MORE INFORMATION / BUYInformation on sporadic phaeochromocytomas
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Dealing with Diagnosis leaflet
£0.00 MORE INFORMATION / BUYInformation and tips from AMEND’s Counsellor on life after a PGL diagnosis
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Living with Uncertainty leaflet
£0.00 MORE INFORMATION / BUYInformation and tips from AMEND’s Counsellor on looking after emotional well-being when affected by a PGL syndrome.
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Talking to Children & Young People About MEN leaflet
£0.00 MORE INFORMATION / BUYLeaflet explaining the importance of explaining MEN to children and young people…