• Saturday 31st May 2025 (10:00-16:00)

    National Council for Voluntary Organisations (NCVO)

    Regents Wharf, 8 All Saints St, London N1 9RL

     

    Our 2025 event will include presentations from medical and other experts on a variety of topics relevant to our rare endocrine disease communities.  You can find the current draft of the day’s programme below.  What a great line-up!  The 2-hour disease-specific Q&A Sessions will be held from 10:30-12:30 and provide a great opportunity to quiz our experts.

    Our city-centre venue has easy access to a range of public transportation links, including King’s Cross Station.

    As ever, we would very much appreciate it if you would make a donation towards your ticket at this free patient event.  This helps us with the costs, which, for a small charity, can be considerable.

     

    Ts & Cs:

    Cancellations:  cancellations should be made no later than 2 weeks’ prior to this event.  Cancellations after this time will incur a charge corresponding to the full price of your place (approx. £60).

    Children:  Please note that there is no creche provided at this event due to cost and previous years’ no-shows and late cancellations.  Children under 12 or those 12 and over who are unaware of your/their disease should not be brought to the venue for this event under any circumstances.  We are not insured for children to be on the premises during our event.  Your understanding is appreciated.

     

    PROGRAMME:

    Our confirmed speakers this year include:

    • MEN1 Q&A – Professor Ashley Grossman (London/Oxford)
    • MEN2/3 Q&A – Professor Karim Meeran (London)
    • Phaeo Para Syndromes Q&A – Dr Paul Carroll (London)
    • ACC Q&A – Dr Florian Wernig (London)
    • Adrenal Insufficiency Workshop – Mrs Louise Breen, CNS (London)
    • Parathyroid Surgery – Mr Shad Khan (Oxford)
    • Head & Neck Paraganglioma Surgery – Mr Rupert Obholzer (London)
    • Benefits Helpdesk – Gregory Underhill (CAB, Leicester)