Patient Experience Films

  • These films about PPGL (SDH mutation) Syndromes were produced in early 2020 (before lock-down) to raise awareness of these rare genetic syndromes.  We are grateful to all the patients, medical professionals and film crew who gave their time to produce our Patient Experience Films. We hope you find them interesting and inspiring.

  • Introducing SDH Syndromes - Diagnosis

  • Introducing SDH Syndromes - Treatment

  • Introducing SDH Syndromes - Future

Annual Patient Information Day Presentations