News in Tag: patient information

• Special Event for Scottish Members

  

  Come and join Peer Support Volunteer for Scotland, Amanda Shaw, with special guest, Genetic Counsellor, Nicola Bradshaw, on Saturday 14th September for networking, peers support and information at this in-person event near Glasgow.

  Click here for more information and to book

• New Patient Information Book for PPGL Syndromes

  

  Our detailed information book for patients on inherited phaeochromocytoma and paraganglioma syndromes is now available to download from our website.  In addition, members with PPGL syndromes will received this booklet for free when registering.  We are eternally grateful to our Medical Advisory Team and special advisors for their help in producing this book.

  Click here to read and download

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