AMEND news in Tag: rare diseases

AMEND's latest Webcast on the topic of Guidelines will be launched on Friday 24 January at 7:30pm.  In this episode, our CEO, Jo Grey, talks to Dr Carla Pieterman, about how guidelines are developed and by whom, as well as why doctors sometimes need to deviate from the recommendations.

Click here to view this and other Webcasts

AMEND's 2024 Annual Patient Information Day will be held on Saturday 1st June, in central Birmingham. This event is open to anyone affected by MEN or PPGL syndromes, as well as for those affected by ACC and MTC.  Come along and benefit from a 2-hour Q&A session with an expert in your disease, as well as plenty of other relevant sessions.  There is a separate stream for young adults from 12 years of age. Tickets are free but donations are appreciated.

Click here for more information and to book

NETs in RETS

November 10th each year is NET Cancer Day, initiated by the International Neuroendocrine Cancer Alliance, of which AMEND (and therefore PPSUK) is a member representing genetic neuroendocrine tumour syndromes.  To better explain the link between NETs and RETS (rare endocrine tumours and syndromes), watch our webinar, NETs in RETS, with Professor Karim Meeran, recorded on Thursday 9th November.

Click here to learn more