ABOUT Phaeo Para Support UK
PPSUK is a branch of the Association for Multiple Endocrine Neoplasia Disorders (AMEND). We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our ‘family’.
The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on adrenal gland tumours (phaeochromocytomas), and inherited phaeochromocytoma and paraganglioma syndromes (PPGLs).
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Who we are
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Aims of PPSUK and AMEND
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How we are governed (UK)
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Who our sponsors are
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Annual Reports & Accounts
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Coronavirus Information
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Make a donation
PPSUK is entirely funded by donations to AMEND so your contribution is extremely welcome.
Donate now
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Become a member
Membership of PPSUK is free as are all our information resources, support services and events. By joining it’s easy to meet others in the same boat.
Join us
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Facebook Group
Our private Facebook Group is a secure place to connect with others in similar situations for peers support. Invitations to join are sent upon joining PPSUK.
Join Group
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Latest News
There’s always something going on at PPSUK and AMEND. Check out the latest news
View News
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Latest Video
We are producing an increasing number of videos to help explain complex information.
Watch Now
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Twitter
My summary of what we know so far re Covid / the vaccine / Vitamin D etc. Please share with anyone who you think it… twitter.com/i/web/status/1… Retweeted by AMEND
Fantastic opportunity to run the 2021 London Marathon on October 3rd for AMEND!! Contact helen@amend.org.uk if inte… twitter.com/i/web/status/1…
We'll miss you Geoff. RIP 💛 twitter.com/ACCSupportUK/s…
Not sure what to believe right now? Feeling scared or confused by all the conflicting info flying about re Covid, t… twitter.com/i/web/status/1… Retweeted by AMEND
Some topical feedback on the Pfizer #covid19 vaccine from one of our international members 💪 Lots of info on our w… twitter.com/i/web/status/1…
It’s not too late for some New Year’s resolutions! We are part of this coalition which has sent a letter to the Pri… twitter.com/i/web/status/1… Retweeted by AMEND
One day. pic.twitter.com/bP9DuzDtxl Retweeted by AMEND
How should we treat metastatic pheo and abdominal paraganglioma? Read our latest mini-review and find out!… twitter.com/i/web/status/1… Retweeted by AMEND
@hormone_doc 😢💛
😷 If you have been unfortunate enough to have #COVID19 and have an MEN Syndrome you can help us and others by compl… twitter.com/i/web/status/1…