ABOUT Phaeo Para Support UK
PPSUK is a branch of the Association for Multiple Endocrine Neoplasia Disorders (AMEND). We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our ‘family’.
The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on adrenal gland tumours (phaeochromocytomas), and in particular on inherited phaeochromocytoma and paraganglioma syndromes (PPGLs).
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Who we are
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Aims of PPSUK and AMEND
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How we are governed (UK)
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Who our sponsors are
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Annual Reports & Accounts
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Coronavirus Information
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Make a donation
PPSUK is entirely funded by donations to AMEND so your contribution is extremely welcome.
Donate now
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Become a member
Membership of PPSUK is free as are all our information resources, support services and events. By joining it’s easy to meet others in the same boat.
Join us
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Facebook Group
Our private Facebook Group is a secure place to connect with others in similar situations for peers support. Invitations to join are sent upon joining PPSUK.
Join Group
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Latest News
There’s always something going on at PPSUK and AMEND. Check out the latest news
View News
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Latest Video
We are producing an increasing number of videos to help explain complex information.
Watch Now
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Twitter
If you have been seen at the University of Cambridge in the UK in the past year for #pheo #para please take this sh… twitter.com/i/web/status/1… Retweeted by AMEND
Thank you @eje for the publication our comments related to the role of relative hypoxia on increased incidence of P… twitter.com/i/web/status/1… Retweeted by AMEND
Other featuring events of #MEDCspring2021 will be #Endocrine update on #Pheochromocytoma by Prof John Newell Pric… twitter.com/i/web/status/1… Retweeted by AMEND
Deadline for applications to our £20k thyroid cancer research Award is 30 April. Details and apply at:… twitter.com/i/web/status/1… Retweeted by AMEND
#RamadanKareem to all who are celebrating! It's not obligatory to fast during this time if you have adrenal insuff… twitter.com/i/web/status/1… Retweeted by AMEND
UK #MEN #PPGL #MTC and #ACC researchers. We look forward to receiving applications to our grant fund by 31 August… twitter.com/i/web/status/1…
@BartsHospital Congratulations everyone!
Our endocrinology department has become the first service of its kind in the world to be awarded a full five stars… twitter.com/i/web/status/1… Retweeted by AMEND
Younger patients with pheochromocytoma have a much higher incidence of germline genetic mutations. Most patients, e… twitter.com/i/web/status/1… Retweeted by AMEND