ABOUT Phaeo Para Support UK
PPSUK is a branch of the Association for Multiple Endocrine Neoplasia Disorders (AMEND). We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our ‘family’.
The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on adrenal gland tumours (phaeochromocytomas), and in particular on inherited phaeochromocytoma and paraganglioma syndromes (PPGLs).
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Who we are
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Aims of PPSUK and AMEND
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How we are governed (UK)
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Who our sponsors are
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Annual Reports & Accounts
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Coronavirus Information
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Make a donation
PPSUK is entirely funded by donations to AMEND so your contribution is extremely welcome.
Donate now
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Become a member
Membership of PPSUK is free as are all our information resources, support services and events. By joining it’s easy to meet others in the same boat.
Join us
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Facebook Group
Our private Facebook Group is a secure place to connect with others in similar situations for peers support. Invitations to join are sent upon joining PPSUK.
Join Group
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Latest News
There’s always something going on at PPSUK and AMEND. Check out the latest news
View News
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Latest Video
We are producing an increasing number of videos to help explain complex information.
Watch Now
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Twitter
Hypoxia stimulates angiogenesis and a metabolic switch in human parathyroid adenoma cells eo.bioscientifica.com/view/journals/…
Metastatic medullary thyroid carcinoma: a new way forward. Comprehensive review. #MTC #MedullaryThyroidCancer… twitter.com/i/web/status/1…
Please sponsor our mad CEO if you can. Thanks 💛 twitter.com/JoGrey2022/sta…
Just over 2 months until our 2022 #Research Awards application deadline! Funding available for projects related to… twitter.com/i/web/status/1…
*chaps
Todays achievements include getting a cupboard through the window (Bournes chaos did that), building a desk and unp… twitter.com/i/web/status/1…
We're looking for a new lab manager! The Centre for Endocrinology, based on QMUL Charterhouse Square campus is curr… twitter.com/i/web/status/1… Retweeted by AMEND
That’s it. The plugs have been pulled on the PCs and we’ve arrived at our new office in #Tonbridge. #MovingDay… twitter.com/i/web/status/1…
Change of Address for AMEND - mailchi.mp/amend.org.uk/c… pic.twitter.com/QNGZoi6bfd
AMEND is closed this week as we move offices. Please note the change of address for AMEND, ACC Support, and Phaeo… twitter.com/i/web/status/1…