ABOUT Phaeo Para Support UK
PPSUK is a branch of the Association for Multiple Endocrine Neoplasia Disorders (AMEND). We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our ‘family’.
The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on adrenal gland tumours (phaeochromocytomas), and in particular on inherited phaeochromocytoma and paraganglioma syndromes (PPGLs).
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Who we are
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Aims of PPSUK and AMEND
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How we are governed (UK)
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Who our sponsors are
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Annual Reports & Accounts
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Coronavirus Information
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Make a donation
PPSUK is entirely funded by donations to AMEND so your contribution is extremely welcome.
Donate now
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Become a member
Membership of PPSUK is free as are all our information resources, support services and events. By joining it’s easy to meet others in the same boat.
Join us
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Facebook Group
Our private Facebook Group is a secure place to connect with others in similar situations for peers support. Invitations to join are sent upon joining PPSUK.
Join Group
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Latest News
There’s always something going on at PPSUK and AMEND. Check out the latest news
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Latest Video
We are producing an increasing number of videos to help explain complex information.
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Twitter
Delighted to share our recently published paper in @Eur_Thyroid_J doi.org/10.1530/ETJ-21… Key learning points:… twitter.com/i/web/status/1… Retweeted by AMEND
Today we thank all nurses for your dedication, commitment & compassion. We appreciate you and the work you do all y… twitter.com/i/web/status/1…
journals.lww.com/oncology-times…
A book by @AmendInfo “Starting a Family” is for families affected by the GenNET syndromes - multiple endocrine neop… twitter.com/i/web/status/1… Retweeted by AMEND
So sorry to hear of the loss of such a fierce advocate. RIP Katherine 💛😢 twitter.com/AddisonsUK/sta…
You can also join in with the trek if you fancy! amend.org.uk/fundraisers-an… twitter.com/JoGrey2022/sta…
We are delighted to bring you the English recording of the 1st ESE Hypoparathyroidism Patient Forum | ESE which is… twitter.com/i/web/status/1… Retweeted by AMEND
It is happening! #EuropeanHormoneDay on 23 May will raise awareness about the importance of #hormones and… twitter.com/i/web/status/1… Retweeted by AMEND
Thanks @ncukcharity ! twitter.com/ncukcharity/st…
Bookingn link: amend.org.uk/patients/suppo…