ABOUT Phaeo Para Support UK
PPSUK is a branch of the Association for Multiple Endocrine Neoplasia Disorders (AMEND). We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our ‘family’.
The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on adrenal gland tumours (phaeochromocytomas), and in particular on inherited phaeochromocytoma and paraganglioma syndromes (PPGLs).
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Who we are
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Aims of PPSUK and AMEND
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How we are governed (UK)
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Who our sponsors are
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Annual Reports & Accounts
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Coronavirus Information
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Make a donation
PPSUK is entirely funded by donations to AMEND so your contribution is extremely welcome.
Donate now
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Become a member
Membership of PPSUK is free as are all our information resources, support services and events. By joining it’s easy to meet others in the same boat.
Join us
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Facebook Group
Our private Facebook Group is a secure place to connect with others in similar situations for peers support. Invitations to join are sent upon joining PPSUK.
Join Group
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Latest News
There’s always something going on at PPSUK and AMEND. Check out the latest news
View News
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Latest Video
We are producing an increasing number of videos to help explain complex information.
Watch Now
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Twitter
The path to recovery from the pandemic won't be linear and people will experience a range of emotions at different… twitter.com/i/web/status/1… Retweeted by AMEND
@kari_dahl Sorry, worked that out too late!
@CarcinoidNETs Thanks for the RT! 💛
Looking forward to listening to Martin Walz again this evening! pic.twitter.com/72a8LrxVbG
#medtwitter & #meded, when you hear hoofbeats, think horses, but also open your eyes and see the zebras 🙋🏻♂️… twitter.com/i/web/status/1… Retweeted by AMEND
We have so many patients with rare diseases in endocrinology. @rarediseaseday highlights the challenges. It can be… twitter.com/i/web/status/1… Retweeted by AMEND
📢 NEWLY LAUNCHING TODAY! --- Diagnosed with #MEN2A & treated with surgery at just 3 years old 👶, Cameron talks abo… twitter.com/i/web/status/1…
📢 NEWLY LAUNCHING TODAY! --- Despite multiple surgeries in his teens altering career plans, Brad doesn't regret ha… twitter.com/i/web/status/1…
@emm_victoria We agree! So brave and inspirational 💛
📢 NEWLY LAUNCHING TODAY! --- Sarah's suffered anxiety from all she's been through. But, the older she gets, the l… twitter.com/i/web/status/1…