• Patient Information Books

    We have produced a variety of publications that are relevant to Phaeochromocytomas, Paragangliomas and the genetic syndromes, as well as on other aspects of living with the conditions. Our aim is to help newly diagnosed patients gain a greater understanding of their condition and to provide reference tools for patients of all ages throughout their life.  The books are developed by AMEND (of which PPSUK is a part) and although some may refer to MEN Syndromes, they are still relevant in the case of PPGL Syndromes.

  • Newsletters

    AMEND newsletters are produced twice a year in April and December and include news for PPSUK.  The latest edition is sent to registered members.  You can view some of our past editions here.  If you would like to receive newsletters, please register by clicking here.

  • Other Resources