• PPSUK is not a registered charity in its own right.  All funds are managed by PPSUK’s parent charity, AMEND.   Please ensure that you let us know that you are fundraising for PPSUK so that we can allocate your funds raised accordingly where appropriate.  Thanks!

    Every penny raised by our members and supporters goes to helping us to provide information and support to patients and families affected by PPGL syndromes and tumours, and to fund research into the diseases.

    If you are organising an event, let us know as we would love to share your news.  For any inquiries about fundraising for us, please contact Helen Blakebrough in the office.

Upcoming Events

  • Great North Run 2025

    AMEND has managed to secure 5 places in this years Great North Run.

    The iconic Great North Run is being held on 7th September 2025. The event is the world’s biggest and best half marathon. Join 50,000 runners following the North East coast, starting in Newcastle City Centre.

    If anyone would like to participate in this event and raise funds for AMEND (target of £200 plus a free AMEND running vest) please contact Helen in the office.

    Note: Please DO NOT sign up with GNR fundraising platform Enthuse!!  The cost is extortionate.  Please use Total Giving (see below)

  • Great Birmingham Run 2025

    AMEND has 5 places in this years Great Birmingham Run being held on Sunday 4th May 2025.

    If anyone would like to participate in this run and raise funds for AMEND (target of £200 plus a free AMEND running vest) please contact Helen in the office.

     

    Note: Please DO NOT sign up with fundraising platform Enthuse!!  The cost is extortionate.  Please use Total Giving (see below)

  • Great Bristol 10k Run

    AMEND has 5 places at this 10k run in the Southwest, taking place on Sunday 11th May 2025.

    If anyone would like to participate in this run and raise funds for AMEND (target of £200 plus a free AMEND running vest) please contact Helen in the office.

     

    Note: Please DO NOT sign up with fundraising platform Enthuse!!  The cost is extortionate.  Please use Total Giving (see below)

  • London Marathon

    AMEND has just one space on the official London Marathon in April 2026.  The fundraising target is a minimum of £2000 (which has always been exceeded).  We receive multiple enquiries about this prestigious event and AMEND reserves the right to choose our runner from all applicants (who are asked to provide details of why they wish to run and an estimate of potential fundraising level).

    If you are interested in fundraising for AMEND by running in this event, please send your expression of interest with a realistic estimate of the total funds you will raise to Helen in the office.

  • Virtual Challenges

    Virtual challenges can help you make exercising into a habit. You are 4 times more likely to achieve your goal if you also join a Conqueror challenge, because it helps you setup a SMART fitness goal and it motivates you from start to finish.

    Completing any of the challenges rewards you with a stunning finisher’s medal that will stand up in your collection.

    You can choose a timeframe for each challenge of up to 78 weeks, and can either complete it solo or as a team

    Click here for more information

     

VIRTUAL FUNDRAISING PLATFORM

  • When raising sponsorship for any fundraising events, please use Total Giving.  AMEND is NOT registered with JustGiving (due to costs) and cannot access full data from their site.  Total Giving does much the same as JustGiving and is much more cost-effective for a charity of our size. Thanks!

Online Fundraising

Past Events

  • Yorkshire 3 Peaks
  • Petra Trek
  • Sahara Trek

Offline Fundraising

  • The following forms will be useful to anyone raising money offline. UK tax-payers can complete the Gift Aid form enabling AMEND to reclaim extra funds from the Government at no cost to yourself.

  • Collecting Boxes

    These cute, bright cuboids (8cm squared) can hold a deceptively large number of coins and are great for all that nuisance change that gets left around the house or in the washing!  Order up to two at a time for free from our shop.

Fundraising Resources