• PPSUK is not a registered charity in its own right.  All funds are managed by PPSUK’s parent charity, AMEND.   Please ensure that you let us know that you are fundraising for PPSUK so that we can allocate your funds raised accordingly where appropriate.  Thanks!

    Every penny raised by our members and supporters goes to helping us to provide information and support to patients and families affected by PPGL syndromes and tumours, and to fund research into the diseases.

    If you are organising an event, let us know as we would love to share your news.  For any inquiries about fundraising for us, please contact Helen Blakebrough in the office.

Captain Tom's 100

  • ‘Tomorrow will be a good day’

    Imagine if we could get 100 members to fundraise and imagine if each of those raised £100……!

    What is ‘Captain Tom 100’?

    Captain Tom 100 is a new fundraising challenge, inspired by the late great Sir Captain Tom Moore. The challenge will mark a year since he embarked on his own incredible fundraising challenge and celebrate his 101st birthday.

    Everyone – of all ages and abilities – is invited to take on a challenge around the number 100 any time and anywhere over Captain Tom’s birthday weekend, starting on Friday 30th April through to Bank Holiday Monday 3rd May. That could be walking 100 steps or running 100 metres, scoring 100 goals, baking 100 cakes, climbing 100 stairs, hopping 100 laps of the garden, building 100 sandcastles, writing a 100-word poem, flipping 100 pancakes – anything at all, inside or outside.

    Click here for AMEND’s unique link to fundraise or donate

    Here are some ideas to get you started:

Upcoming Events

  • Trek to Petra (Jordan) – 14-24th October 2022

    Join us for the trip of a lifetime!  Join us on a trek through the deserts of Jordan to reach the iconic ancient city of Petra, one of the modern Seven Wonders of the World.

    A monthly payment plan is possible for funding the trip.  Use Virginmoneygiving to fundraise after that and leading up to the trip.

    >Click here for more information!


Online Fundraising

  • Amazon Smile

    Support AMEND every time you shop online with Amazon, at no cost to you!  Click here to set up.



Past Events

  • Yorkshire 3 Peaks
  • British 10k London Run
  • Sahara Trek

Offline Fundraising

  • The following forms will be useful to anyone raising money offline. UK tax-payers can complete the Gift Aid form enabling AMEND to reclaim extra funds from the Government at no cost to yourself.

  • Collecting Boxes

    These cute, bright cuboids (8cm squared) can hold a deceptively large number of coins and are great for all that nuisance change that gets left around the house or in the washing!  Order up to two at a time for free from our shop.

Fundraising Resources