• PPSUK is not a registered charity in its own right.  All funds are managed by PPSUK’s parent charity, AMEND.   Please ensure that you let us know that you are fundraising for PPSUK so that we can allocate your funds raised accordingly where appropriate.  Thanks!

    Every penny raised by our members and supporters goes to helping us to provide information and support to patients and families affected by PPGL syndromes and tumours, and to fund research into the diseases.

    If you are organising an event, let us know as we would love to share your news.  For any inquiries about fundraising for us, please contact Helen Blakebrough in the office.

Upcoming Events

  • Great North Run 2024

    AMEND has managed to secure 5 places in this years Great North Run.

    The iconic Great North Run is being held on 8th September 2024. The event is the world’s biggest and best half marathon. Join 50,000 runners following the North East coast, starting in Newcastle City Centre.

    If anyone would like to participate in this event and raise funds for AMEND (target of £200 plus a free AMEND running vest) please contact Helen in the office.

    Note: Please DO NOT sign up with GNR fundraising platform Enthuse!!  The cost is extortionate.  Please use Total Giving (see below)

  • Great South Run 2024

    AMEND has 5 places in this years Great South Run.

    The Great South Run is being held on Sunday 20th October 2024. The South coast’s biggest and best running event takes place in Portsmouth over a fast and flat 10 mile route.

    If anyone would like to participate in this run and raise funds for AMEND (target of £200 plus a free AMEND running vest) please contact Helen in the office.

     

    Note: Please DO NOT sign up with fundraising platform Enthuse!!  The cost is extortionate.  Please use Total Giving (see below)

  • Great Bristol 10k Run

    New for 2024!  AMEND has 5 places at this 10k run in the Southwest, taking place on Sunday 19th May.

    If anyone would like to participate in this run and raise funds for AMEND (target of £200 plus a free AMEND running vest) please contact Helen in the office.

     

    Note: Please DO NOT sign up with fundraising platform Enthuse!!  The cost is extortionate.  Please use Total Giving (see below)

  • London Marathon

    AMEND has one space on the official London Marathon usually every 5 years (sometimes more frequently).  The fundraising target is a minimum of £1000 (which has always been exceeded).  We receive multiple enquiries about this prestigious event and AMEND reserves the right to choose our runner from all applicants (who are asked to provide details of why they wish to run and an estimate of potential fundraising level).

    Our 2024 place has now been allocated.  More details will appear here soon.

  • Jurassic Coast Challenge (September 2024)

    Join our team as we trek along the beautifully scenic Dorset to Devon coastline over one weekend.  This challenge will take place from 6-8 September 2024, giving you plenty of time to save up as well as fundraise (target £100).

    Costs: £80 registration fee payable immediately and £320 trek fee (payable 8 weeks prior).  When booking, select ‘Full Payment Option’.  For more information, please follow the booking website link below.  Once booked, please notify Helen that you will be joining our team.

    Please ensure that you are fit enough for this challenge as it will be hilly!

  • Virtual Challenges

    Virtual challenges can help you make exercising into a habit. You are 4 times more likely to achieve your goal if you also join a Conqueror challenge, because it helps you setup a SMART fitness goal and it motivates you from start to finish.

    Completing any of the challenges rewards you with a stunning finisher’s medal that will stand up in your collection.

    You can choose a timeframe for each challenge of up to 78 weeks, and can either complete it solo or as a team

    Click here for more information

     

VIRTUAL FUNDRAISING PLATFORM

  • When raising sponsorship for any fundraising events, please use Total Giving.  AMEND is NOT registered with JustGiving (due to costs) and cannot access full data from their site.  Total Giving does much the same as JustGiving and is much more cost-effective for a charity of our size. Thanks!

Online Fundraising

Past Events

  • Yorkshire 3 Peaks
  • Petra Trek
  • Sahara Trek

Offline Fundraising

  • The following forms will be useful to anyone raising money offline. UK tax-payers can complete the Gift Aid form enabling AMEND to reclaim extra funds from the Government at no cost to yourself.

  • Collecting Boxes

    These cute, bright cuboids (8cm squared) can hold a deceptively large number of coins and are great for all that nuisance change that gets left around the house or in the washing!  Order up to two at a time for free from our shop.

Fundraising Resources