Our Annual Patient Information Days are large, friendly gatherings of around 100 patients affected by all the rare endocrine conditions that AMEND covers, including PPGL Syndromes. A variety of talks are given by a range of medical experts, including specialised sessions for each disease. A creche and activities for children are usually provided.
Our event changes annually between venues in central London and elsewhere in the UK.
Due to the continued risk from the Coronavirus pandemic, the 2021 Annual Patient Information Day has been moved from May to October. We hope that, by the autumn, almost everyone will have been vaccinated against the virus, and that events such as this will be safer for all.
We may hold some virtual information events in May, depending upon the availability of our health professional volunteers (many of whom are currently working on covid-19 wards).
Please check this page and our social media channels regularly for updates.
“….it was good to chat with [the medical speakers]. You assembled an excellent panel of speakers who are open and approachable as well as knowledgeable. We also met some interesting people among the other delegates. The venue was good too, and the dinner was excellent.” (patient)
“Brilliant day and so well organised. Thrilled to have been able to attend. Topics so relevant and make you feel in control of your condition. Thank you.” (patient)
2021 Annual Information Day
The 2021 Information Day will be held on Saturday 16th October at the Novotel Hotel near Paddington Station in London.
2018 Annual Information Day
Videos include: Dealing with Diagnosis and Uncertainty; Communicating with your GP; Working with your MDT; Getting Involved in Research and Preparing for Surgery.
2017 Annual Information Day
Videos include: Sharing Difficult News with Friends and Family; Understanding Research; Overview of MEN1, MEN2, MEN3 and SDHx; Introduction to and Update on ACC; Using Social Media for Support.
Earlier Annual Information Days
Visit the AMEND YouTube channel for more videos on a variety of topics.