The following information on the current pandemic is aimed at those with the rare endocrine diseases for whom we provide information resources and support services. It is from reputable sources such as the NHS and the World Health Organisation in conjunction with our own medical advisors and those of other similar organisations.
Beware of misinformation that is being spread on social media.
On this page, we bring together, and regularly review and update, the information currently available to us, so check back regularly.
As we cope with the 2nd wave over the Winter of 2020, it continues to be essential to follow the advice given out by the NHS which is detailed below. Whilst the majority of people may have mild to no symptoms and not require hospital treatment, the virus spreads easily, and can have a devastating effect on those who are more vulnerable.
- You can find more detailed information on Coronavirus in rare endocrine tumours on the AMEND website.
- Resources for managing mental health are also available on the AMEND website.
We all need to do our bit to protect one another.
This page was reviewed on: 02/11/2020
How is AMEND Affected by the Pandemic?
Jo and Helen worked continually from home throughout the COVID-19 crisis (March through August) and returned to work in the office from 1 September (that didn’t last long!). The office is now closed again and both Jo and Helen are working their usual hours from home (Jo – full time 9am-5pm; Helen part time 9am-2pm Mon-Thurs). Helen is also visiting the office once a week to process memberships and merchandise orders. The following have been affected during the pandemic:
- The 2020 Annual Patient Information Day was cancelled but the 2021 event will be held in London on Saturday 8th May, 2021 – you can already register.
- Regional Patient Events are continuing to be held via online webinar rather than in person. You can attend any of these, no matter where you live. Click here to find out more.
- All 2020 fundraisers were all either cancelled or postponed (such as the London Marathon). There are other ideas about how you can support our work here. If you want to undertake a ‘back garden challenge’, you can still find the resources you need here. As usual, we’d still love to hear about your activities so that we can help support you
NB: We will not be providing a daily news update. Please visit the website of the BBC who cover the government briefings.
General Advice and Information:
Advice Specific to People with Long-term (Underlying) Medical Conditions:
If you’re identified as being extremely vulnerable and at the highest risk level, you will be on a list that is held by the NHS who will contact you if you need to self-isolate (shield) at any time.
- BBC Advice for People With Health Conditions
- Society for Endocrinology Advice for people with adrenal or pituitary insufficiency (taking corticosteroids for pituitary or adrenal problems) [PDF download]
- Steroid Dependent Patient UK Emergency Card download (complete and keep)
- British Thyroid Association and Society for Endocrinology Statement for patients with Thyroid Cancer [PDF Download]
- One Cancer Voice Advice for People with Cancer [PDF download]
- European Society for Medical Oncology (ESMO) information for people with cancer [external link]
Fact-Checking the Media
- Get Legally Speaking – podcasts of UK lawyers answering questions (from employment to marital queries, including COVID-19 related issues)
- COVID-19 Scam Checker – Find out about coronavirus scams and how to avoid them (US-based site)
- C-19 ZOE app: this is a daily COVID-19 Symptom Tracker for the UK. It can be used daily (takes 1 minute) even if you feel well, and can arrange access to home testing if you report symptoms. Click here for more information.
- Serco (NHS) Test & Trace App: Promised in June and finally released on 24 September, this app contains information about COVID-19, a facility to scan QR check-in codes, and will notify you to self-isolate if you have been potentially exposed to someone with the virus. You may need to update your smartphone to be able to use this app. Click here for more information.