AMEND news in Tag: phaeo para

Special Event for Scottish Members

Come and join Peer Support Volunteer for Scotland, Amanda Shaw, with special guest, Genetic Counsellor, Nicola Bradshaw, on Saturday 14th September for networking, peers support and information at this in-person event near Glasgow.

Click here for more information and to book

AMEND's 2024 Annual Patient Information Day will be held on Saturday 1st June, in central Birmingham. This event is open to anyone affected by MEN or PPGL syndromes, as well as for those affected by ACC and MTC.  Come along and benefit from a 2-hour Q&A session with an expert in your disease, as well as plenty of other relevant sessions.  There is a separate stream for young adults from 12 years of age. Tickets are free but donations are appreciated.

Click here for more information and to book

NETs in RETS

November 10th each year is NET Cancer Day, initiated by the International Neuroendocrine Cancer Alliance, of which AMEND (and therefore PPSUK) is a member representing genetic neuroendocrine tumour syndromes.  To better explain the link between NETs and RETS (rare endocrine tumours and syndromes), watch our webinar, NETs in RETS, with Professor Karim Meeran, recorded on Thursday 9th November.

Click here to learn more

Kids’ Cartoon Reaches Finals of Film Awards!

We are thrilled that our cartoon for kids about PGL syndromes has reached the finals of the Charity Film Awards! We now have a chance to win a People’s Choice Award if we get enough votes in the 2nd round. So, even if you voted for our film in the first round, please do vote for it again by Friday 10th March! Thank you!

Click here to view and vote

Charity Film Awards Voting Period Extended

In autumn 2022, we entered our new children's cartoon about paraganglioma syndromes ('Me, my mum and Dave') in the 2023 Smiley Charity Film Awards.  The first round voting period has now been extended until the end of 16th January! Please vote for our film to help raise awareness of PGL syndromes and celebrate this wonderful piece of work.

Click here to view and vote!

Please vote for our cartoon!

We have entered our lovely little cartoon, 'Me, my mum and Dave' in the 2023 Smiley Charity Film Awards!  Please vote for us to help raise awareness of PGL syndromes.

Click here to vote!

New Kids’ Cartoon Helps Explain PGL Syndromes to 5-year olds

Our cartoon for kids about PGL syndromes was launched on NET Cancer Day 2022 (10th November).  The Cartoon, 'Me, My Mum, and Dave' explains PGL syndromes in the simplest terms and is aimed at children from age 5.

Click to learn more