AMEND news in 2022
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Please vote for our cartoon!
We have entered our lovely little cartoon, 'Me, my mum and Dave' in the 2023 Smiley Charity Film Awards! Please vote for us to help raise awareness of PGL syndromes.
Click here to vote!
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New Kids’ Cartoon Helps Explain PGL Syndromes to 5-year olds
Our cartoon for kids about PGL syndromes was launched on NET Cancer Day 2022 (10th November). The Cartoon, 'Me, My Mum, and Dave' explains PGL syndromes in the simplest terms and is aimed at children from age 5.
Click to learn more
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2023 Annual Patient Information Day Bookings Open
The 2023 Annual Patient Information Day run by AMEND for our rare endocrine diseases will be held in central London on Saturday 20th May. Tickets are free.
Click here for more information
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Funding received for Peer Support Meetings
AMEND, who runs PPSUK, has been awarded a grant of £9,090 from the National Lottery Community Fund for a Peer Support Meetings project.
Click here for more information
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Phaeo Para Awareness Day 2022
PHAEO PARA AWARENESS WEEK (22-26 AUGUST)The last full week of August has been adopted as the awareness week for our diseases and we are organising a few activities to try to highlight the symptoms of phaeo para patients to raise awareness and encourage earlier diagnosis. We hope you will take part!