AMEND news in Month: January 2023
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Do you have a story to tell?
Our members love to read about the experience of others with their disease. Some lovely people have already written their 'stories' or starred in our films, but for our 20th anniversary, we're aiming to include another 20 stories on our webpage. Do you have a story to tell about you and your family's experience of diagnosis, treatment and life with your PGL syndrome? We'd love to hear it! We have a template for you to use if you want to, but otherwise, do your own thing and don't forget to send a few photos.
Click here for more information
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Charity Film Awards Voting Period Extended
In autumn 2022, we entered our new children's cartoon about paraganglioma syndromes ('Me, my mum and Dave') in the 2023 Smiley Charity Film Awards. The first round voting period has now been extended until the end of 16th January! Please vote for our film to help raise awareness of PGL syndromes and celebrate this wonderful piece of work.
Click here to view and vote!
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Peer Support Meetings for 2023
A range of dates and times for in-person and virtual Peer Support Meetings during 2023 have now been agreed. Our Peer Support Volunteers hope to welcome you to one soon!
Click here for more information